And So, Here I Am Again.

I am relatively sure that if a survey were taken of several hundred people asking them to list 10 things they feel uncomfortable or embarrassed doing, I would bet that asking for help would appear somewhere on that list. No one wants to ask for help. It starts when we are little and learning to walk. We want to do it ourselves. Then in grade school we don't raise our hand to ask a question or say that we don't understand the material for fear of being judged or thought of as stupid. As we become adults we find it hard to ask for help when we are struggling because society has taught us that we must learn to stand on our own 2 feet. Asking for any kind of help is hard, but when money is the issue, it becomes unbearable! 

Almost exactly a year ago I found myself in a situation I never thought I would be in. I had been diagnosed with a brain tumor, technically a pituitary tumor, but it was in the middle of my brain, so brain surgery was required. I had lost ALL of my peripheral vision because the tumor was pressing on my optic nerves. I had no idea how I was going to afford the astronomical medical costs and loss of wages that having this surgery would cause. And before you ask, yes I do have insurance, but 30% of a $229,000 hospital bill, even when it is cut down to the "reasonable and customary" charge was something this single mom could not even fathom of how to come up with the money to pay. I am not an extravagant person. I never really have been, but when I became the single mother of 2 girls ages 2 and 5, frugal became my middle name. I have no savings as eating was more important to us. We rarely take vacations because we can't afford them. I am not saying all this to solicit a pat on the back. I want to share that I am not a frivolous person when it comes to money. See, there's that fear of being judged rearing it's ugly head. Last year my youngest daughter started a GoFundMe page to help with my medical expenses and to help with my loss of wages while I was recovering. I was humbled to say the least. Friends and strangers came to my aid. I was so grateful. Never in a million years would I have thought last year that I would be going through all this again, but I am. The Reader's Digest version is that there was some of the tumor left. When the neurosurgeon describes the tumor as "huge" you know it must have been a bear. I knew that eventually I might have to have that removed if it grew, but about a month ago I was devastated to learn that I had now developed a cyst in the same area, and it is already affecting my vision. This has changed everything. I was planning to wait so I could save up vacation and sick time to avoid loss of wages. Maybe I could save a little money or get a part time job to bank some to help with expenses, but now I am right back in the same boat and can't do either of those things because of the quick pace at which we have to move to get the tumor and cyst out. My surgery is scheduled for November 2nd. Added to that they are doing the procedure this time with an "inter-operative MRI" to make sure ALL of the tumor is gone before I come out of the operating room. I found out today that because of that I will need an additional MRI before I go into surgery to make sure that process runs smoothly. I am still trying to find the money to pay for the MRI done last summer that revealed the cyst. Just to give you an idea, each MRI costs me $750.00. The hospital bill will cost into the thousands, and because of recovery time, I may lose anywhere from $500.00 to $1000.00 in wages, not to mention that last year my "disability" income did not even get approved until well after I had returned to work. As we all know, bills don't wait. they are due when they are due. I'm not going to go on and on, and I am not trying to make this sound like a sob story. The long and short of it is that I am asking for help again. I wish I didn't have to, and if I win Publisher's Clearing House, I will make sure to let everyone know and give any GoFundMe money to charity, but until that happens, I will need money to hopefully get this thing in my brain to leave and STAY GONE this time. 

I know so many of you that read this blog helped me last time, and I will never be able to tell you how grateful I was and still am. Let me say thank you in advance to anyone who chooses to help now, and my greatest wish is that some day I will be in the financial position to pay it forward 1000 times over. The link to the page is above, but I will post it here again. Thank you. I love you all!

https://www.gofundme.com/b26dhnqu# 

24 on the 24th

As of the very first typing of this entry it is 12:00 AM on September 24, 2016. This is a very special day in my life. For one reason, this is the day my parents chose to marry back in 1960, and because of that day, I was eventually born. So, in essence, because of September 24th, 1960 and what happened on that day, I am here. Because I was born, the second special thing happened on this day. On September 24, 1992, I had a baby girl. So much has happened since she came into the world 24 years ago. She began life with 2 parents who were married. She was an only child. She had 2 aunts and an uncle, 4 grandparents, and 1 great-grandparent. Today she faces life raised by a single mom. She has lost 2 grandfathers and her great grandmother. She has gained a sister with whom she grew up as best buds, a cat that she loves fiercely, a college degree and just recently her very first car she bought on her own.  She has faced more trials than most young women her age, and life has not always been easy, but she has never given in. She has persistently gone after what she has wanted in life. Today she is a professional actress having secured a job with Va-Rep's touring company. She has wanted to be an actress most of her life, and she is. I know she knows how lucky she is to be able to say that. I always told her that she needed to make a decision. She could go after 2 things as an actress. She could go after fame or making her living, but they were not necessarily the same thing. Would she love to be accepting an Emmy, Oscar or Tony in the next 5 years? Sure! But..going to a job everyday that she loves is just fine for now. She will leave for "the road" on September 29th, and will be gone most of the fall. She will see a good portion of the East Coast and visit many places that she has never been. I am so excited for her, and I have to say, a little envious. But I am definitely proud of her. I cannot say it enough! What an adventurous 24 years, but one thing I know for sure, the next 24 will be just as adventurous if not more so. With this birthday you begin your first official year as a full fledged grown-up. No more school! This is real life, kid! I have no doubt you're going to kick its ass! Happy Birthday, sweet girl! I love you!

Mike's "Cysta" is Already a Problem Tennant

Back in the middle of July I wrote an entry with an update on my tumor (Mike Wazowski). I know several of you have been following my progress through this whole tumor/brain surgery ordeal that started a little less than a year ago. Wow! That's hard to believe that it's been almost a year since the exisitence of Mike was first discovered. So much has happened in these last 10 months. When one is told that they have a tumor it strikes a chord. No matter what is said after that, you have this initial feeling of dread. It is probably because we've watched too many scenes in movies or on TV where the hero or heroine fights bravely to the death with a brain tumor, we instantly think CANCER. Mine was not cancer. It was never thought to be cancer, but knowing that, I almost took it too lightly at first. Even after everything was removed, (well, not everything) I felt fine, by my standards. I have my granfather's "shake it off" constitution, so I thought I'm feeling fine. It's all over, and even if there is something hanging around, I can live with it until it poses a threat. I had made all mylittle plans of waiting until May to have my surgery. Afterall that fits better with my schedule, and I can bank enough time at work to be able to take the month needed to recover at full salary instead of 2/3 or, worse, days with no salary at all. NEWSFLASH: Threat posed! Last week I saw Dr. Astruc, the eye specialist who first caught the problem, for a routine follow-up. Part of the follow-up was a field of vision test as I had had the previous 2 visits since Mike had mostly affected my peripheral vision. I was a little worried when I took the eye test, you know the one with the letters, and my right eye was acting the same way it had when all this mess started but not as bad. The last letter in the line was invisible, not the last 2. But, as we tend to do as humans, I rationalized. It's dark in here. Maybe I have something in my eye, etc., etc. Then I went to take the field of vision test, and we started the process of staring down the long tunnel and clicking the plastic piece in my hand every time I saw a flash of light. Back to the examining room to wait for Dr. Astruc. As he looked at the results compared with my results in May, I didn't hear what I wanted to hear. Left eye? PERFECT! Right eye? Another dark spot has appeared. Well, CRAP! He said that he thought the cyst was probably causing that, but he would send the report to Dr. Sahni, my neurosurgeon, and he would make the determination of how to proceed. I saw Dr. Astruc on a Wednesday, and Thursday morning I got a call from Dr. Sahni. To summarize: My plans to wait until May went out the window. In fact, when I told Dr. Sahni I wanted to wait until then, he chuckled and said, "No, you cannot wait until then." So as it stands now, I am shooting for the first week of November, almost exactly where I was a year ago. I'm not thrilled, but it is what it is. What else am I going to do? This time they will do what Dr. Sahni called an Inter-operative MRI. That means they will do the MRI while I am still under to make sure EVRYONE vacates! I can tell you one thing. Mike's not getting his security deposit back!