Tuesday, November 8, 2016

Not What I Expected

Well, ladies and gentlemen, tomorrow will mark a week since round 2 of brain surgery. Before going in last week, I thought, this won't be as bad. At least I know what to expect this time. I got through it before without many issues, this should be the same....right? As my drama teacher used to say when we flippantly assumed something, "WRONG!" Yes, I was going in for the same procedure, a transsphenoidal hypophysectomy, something my nurses must not have known right away while prepping me for surgery last Wednesday morning because they kept talking about someone coming in to do my fiducicials - something used to help in surgery if it were being done cranially. It wasn't, and, thank God, they figured that out. They rolled me down to do a CT, then an MRI before I ever went into surgery. I don't remember much after that. It was probably around 9:30 in the morning when surgery finally began. I probably woke up in recovery around 8pm that night. Yes, if you read anything previous to this, it was MUCH longer. Why?, you may ask. Well, they removed as much of the leftover tumor from last year and drained and removed the cyst that had developed, and closed me up. Then they wheeled me into the MRI room, while still under anesthesia to check to see if anything else was left. There was. Back to the operating room to open me back up and do a little more house cleaning, essentially 2 procedures for the price of 1. So, about 11 hours later, surgery was over. This compared to approximately 5 hours last year. What does that matter?, you might say. I am finding a whole hell of a lot. First of all, my throat hurt terribly from having the intubation tube in it for so long. This made swallowing almost excruciating. Consequently, this made eating extremely difficult. Added to that, just like before, my entire nose and nasal cavity was packed. No breathing through the nose. If you've ever had sinus issues and been all stopped up, you know what it's like trying to eat and breathe at the same time. Sleeping was a whole other issue. The first night I woke up every 10 minutes as breathing through my mouth caused EXTREME dryness. The roof of my mouth also hurt from the intubation tube, so trying to close my mouth and swallow with next to no saliva was a real chore. The next night got a little better. I only woke up every 20 minutes, and by the third day I actually took a nap sitting up for almost an hour. By Saturday I was allowed to come home, but to my disappointment, I still had to keep my nose packed until Monday. I was devastated. Last time, my surgery was on Tuesday, and my packing came out on Friday. I guess it could have had something to do with the fact that they actually rooted around twice in there and had to make sure healing was well on its way. Finally, joy of joys!, yesterday (Monday) my packing came out. You cannot know how happy I was, aside from the fact that it feels like your brain is really coming out through your nose. I CAN BREATHE AGAIN! I am still sleepier than normal, and my throat still hurts, but things are getting better day by day. I will have a follow up visit with my neurosurgeon on November 29th. After that I will have an MRI in mid January to see if everybody is finally OUT. Spoiler Alert: It seems there is some that is attached to a blood vessel, and I may still need Gamma Knife Surgery (pinpointed radiation) to remove that, but we will cross that bridge if we come to it. For now, I am thinking that Mike and his "cysta" are finally gone, and I will continue to heal. Thank you all for your good thoughts, prayers and surrounding me with love and light. I am not out of the woods yet, but I'm in a nice clearing for now.

We'll Never Get to Heaven Till We Reach That Day

 I first saw the musical, Ragtime, several years ago at the Dogwood Dell Festival of the Arts. Both my girls were still in elementary school...