Thursday, March 2, 2017

What a Long Strange Trip It's Been!

Well, it's about that time again. Time to update you on the status of the eviction of Mike Wasowski and his "Cysta." It has now been exactly 4 months since I had my second surgery to try to kick Mike Wasowski to the curb.
Quick Timeline of Events to this point: 
September 2015 - Can't see images in eye test. 1st Doc gives Dx of Macular Degeneration
                              Get second opinion. 2nd Doc discovers NO PERIPHERAL VISION thru Field                                  of Vision test. Suspects Pituitary Tumor affecting Optic Nerves. Referral to 
                              Neurosurgeon.
October 2015 -     MRI
                              Results show huge tumor taking up the space in the Brain called the Cella.                                        Immediate surgery is suggested.
                             I wait 2 weeks until my show closes
October 27, 2015 - Surgery to remove Tumor (Mike Wasowski)
December 31, 2015 - MRI
March 2016 -    Neurosurgeon breaks the news that there is some tumor left.
July 2016     -    MRI
September 2016 - Neurosurgeon tells me a cyst has developed where the tumor used to be. I will                                  need surgery AGAIN
                            2nd Field of Vision test shows cyst is already affecting vision
November 2, 2016 - 2nd surgery to remove leftover tumor and cyst. 
February 2017 - MRI

Which brings us to today. Well, there is good news and, well, not bad news, but not the "Yay! I'm rid of Mike forever!" news I'd hoped for. On February 20th I went to my wonderful Opthalmologist, Dr. Juan Astruc, the man responsible for diagnosing me correctly, and, not to be over dramatic, but for saving my eyesight and maybe my life. Another Field of Vision test, my third. My peripheral vision has returned 100% in both of my eyes. I am thrilled. He was too! You never really realize how much you use your peripheral vision until you lose it. Definitely encouraging news! Which brings me to my next Dr. Visit, Dr. Sahni, my neurosurgeon.
Most of us have lived somewhere for a long period of time, our childhood home or our first home with our spouse. It's hard to leave that to move on. Mike lived in my brain for at least 10 years. You might say he grew up there, and obviously he did not want to leave. Well, this time he's gone, but he left something behind for me to remember him. Truthfully, this memento was left from the very first surgery, but I had forgotten until I spoke with Dr. Sahni this past Tuesday. My daughter reminded me on the way home. Going back to post 1st surgery, there was a tiny bit of the tumor attached to a blood vessel. As you can imagine, that is a delicate situation. You don't just go cutting away next to something that could potentially cause a hemorrhage in your brain. After the 2nd surgery, I went on a prescription drug called Cabergoline. One of the uses for this drug is to suppress the growth of pituitary tumors: A.K.A. Mike Wasowski. Here's the not-so-great news: Mike isn't totally gone, but here's the good news: The memento he left behind hugging my blood vessel is shrinking thanks to my superhero, CABERGOLINE! Envision really buff guy in tights and a cape with a big "C" on his chest. 
So, where does this leave me in my saga with Mike Wasowski? We have not totally parted ways, and in June, I will have yet another MRI. If what's left behind is still shrinking, YAY! If not, or it's grown at all, we may have to go the radiation route, but I'm crossing that bridge when I come to it. For now I'm celebrating my restoration of vision and all the supportive friends and family I have on this wild ride!


We'll Never Get to Heaven Till We Reach That Day

 I first saw the musical, Ragtime, several years ago at the Dogwood Dell Festival of the Arts. Both my girls were still in elementary school...