What a Long Strange Trip It's Been!

Well, it's about that time again. Time to update you on the status of the eviction of Mike Wasowski and his "Cysta." It has now been exactly 4 months since I had my second surgery to try to kick Mike Wasowski to the curb.
Quick Timeline of Events to this point: 
September 2015 - Can't see images in eye test. 1st Doc gives Dx of Macular Degeneration
                              Get second opinion. 2nd Doc discovers NO PERIPHERAL VISION thru Field                                  of Vision test. Suspects Pituitary Tumor affecting Optic Nerves. Referral to 
                              Neurosurgeon.
October 2015 -     MRI
                              Results show huge tumor taking up the space in the Brain called the Cella.                                        Immediate surgery is suggested.
                             I wait 2 weeks until my show closes
October 27, 2015 - Surgery to remove Tumor (Mike Wasowski)
December 31, 2015 - MRI
March 2016 -    Neurosurgeon breaks the news that there is some tumor left.
July 2016     -    MRI
September 2016 - Neurosurgeon tells me a cyst has developed where the tumor used to be. I will                                  need surgery AGAIN
                            2nd Field of Vision test shows cyst is already affecting vision
November 2, 2016 - 2nd surgery to remove leftover tumor and cyst. 
February 2017 - MRI

Which brings us to today. Well, there is good news and, well, not bad news, but not the "Yay! I'm rid of Mike forever!" news I'd hoped for. On February 20th I went to my wonderful Opthalmologist, Dr. Juan Astruc, the man responsible for diagnosing me correctly, and, not to be over dramatic, but for saving my eyesight and maybe my life. Another Field of Vision test, my third. My peripheral vision has returned 100% in both of my eyes. I am thrilled. He was too! You never really realize how much you use your peripheral vision until you lose it. Definitely encouraging news! Which brings me to my next Dr. Visit, Dr. Sahni, my neurosurgeon.
Most of us have lived somewhere for a long period of time, our childhood home or our first home with our spouse. It's hard to leave that to move on. Mike lived in my brain for at least 10 years. You might say he grew up there, and obviously he did not want to leave. Well, this time he's gone, but he left something behind for me to remember him. Truthfully, this memento was left from the very first surgery, but I had forgotten until I spoke with Dr. Sahni this past Tuesday. My daughter reminded me on the way home. Going back to post 1st surgery, there was a tiny bit of the tumor attached to a blood vessel. As you can imagine, that is a delicate situation. You don't just go cutting away next to something that could potentially cause a hemorrhage in your brain. After the 2nd surgery, I went on a prescription drug called Cabergoline. One of the uses for this drug is to suppress the growth of pituitary tumors: A.K.A. Mike Wasowski. Here's the not-so-great news: Mike isn't totally gone, but here's the good news: The memento he left behind hugging my blood vessel is shrinking thanks to my superhero, CABERGOLINE! Envision really buff guy in tights and a cape with a big "C" on his chest. 
So, where does this leave me in my saga with Mike Wasowski? We have not totally parted ways, and in June, I will have yet another MRI. If what's left behind is still shrinking, YAY! If not, or it's grown at all, we may have to go the radiation route, but I'm crossing that bridge when I come to it. For now I'm celebrating my restoration of vision and all the supportive friends and family I have on this wild ride!

It's Not Brain Surgery...Wait! Yes It Is!

The big white spot in the center is the tumor.

On September 9^th I went to the eye doctor. It had been over a year since I had had an exam, and it seemed that more and more issues were coming up with my vision, especially at night. I went for the exam, and if you’ve ever had an eye exam, you know they put this big machine in front of your face that looks like a huge, bionic pair of glasses.

 The room is dark, and they show you on the wall in front of you, about 15 feet away, a strip with four capital letters, black on a white background. They test one eye at a time. First up – the Right eye. I could see the first 2 letters fairly clearly, the last 2 I couldn’t, and when I say I couldn’t, I mean, THEY WERE NOT THERE! Not fuzz, not unclear, ABSENT! I blinked my eyes, and they would appear briefly, but fade away to invisibility. I told the doctor this. He switched to the left eye, same problem, but I could see 3 of the letters, the 4^th pulling the same disappearing act (reading right to left.) We finished the exam. He turned on the lights, and was writing out my prescription, ready to send me on my way. I stopped and said, “Wait a minute! What causes that, the letters disappearing?”

He paused a moment, then decided he might dilate my eyes, and “take a look” I waited for my pupils to dilate, then went back into the room and he looked into my eyes with a light as bright as a thousand suns for what seemed like forever. Then, giving you the Reader’s Digest Condensed Version, he told me even though I was very young to have it, I had the beginning stages of Macular Degeneration. If you don’t know what that is, it is an incurable eye disease that would eventually leave me almost blind, no central vision at all. He told me about some vitamins I could take to help slow down or stop the process, and told me some foods to eat that would help and sent me on my way. As I often do in these life changing moments, I took to Facebook and posted a brief summary of what I just shared. A very good friend, who happens to be an OD, immediately commented, “Get a second opinion.” Shortly after that I was at an event with my sister, and she said, “You need to go see someone else about your eyes.” Ironically they both recommended the same person, Dr. Juan Astruc. I saw him on September 30^th, and after 2 hours of tests and scans, and staring into the light and dilated eyeballs, Dr. Astruc came in to tell me I did not have Macular Degeneration. WHEW! Big sigh of relief! I’m not going blind. Then he said, “The next thing I say is going to freak you out, but don’t let it freak you out. You have a tumor pressing on your optic nerve,” quickly adding, “it’s benign.” YAY!....I have…a tumor!?? Wait. What? He went on to explain that they were common enough that he had the neurosurgeon on speed dial, and that the surgery wouldn’t be invasive, they go in through your nose. I’d need to have an MRI, but it was all treatable and everything would be fine. Fast forward to last Monday, October 12th. I had an MRI and saw the neurosurgeon, Dr. K. Singh Sahni, the next day, and he showed me the films. The tumor is a pituitary tumor and is larger than they thought. It has affected almost all of my peripheral vision, and we have to move pretty quickly, as in less than 2 weeks from today, I will be recovering from brain surgery. Naively when Dr. Astruc told me that they would go in through my nose, I was thinking it might even be outpatient. Boy, were my eyes opened. 4 to 5 days in the hospital, the first night in ICU. I am trying to get used to the idea, and don't know if it has fully hit me yet, but I know all is well, and what is going to happen is going to happen. I'm in good hands. Readers use this as a cautionary tale. If I had not gotten a second opinion, I would be well on my way to going blind, and not because of Macular Degeneration, because the tumor would continue to grow until irreparable damage was done to my optic nerve. Listen to your body, and be your own advocate!